Saturday, October 3, 2009

DJAMST in to see Linda

Davin and the all the kids and I were healthy enough to get in to see Linda today. She calls just DJAMST, because it's all of our first initials in order (Davin, Jen, Anya, Maya, Sage and Tiernan.) Her room in the ICU is pretty small, but it's still larger than our pop up camper, so we made it work for about 20 minutes. Then the kids and I cleared out so Davin could have some 1 on 1 time with his mom.

Linda was on her Passy-Muir valve again, and this time she was talking like a champ. She's still on the quiet side, but she can belt out full sentences and complex thoughts. It was really good for the kids to be able to hear her, I think they are feeling much better about how she's doing now.

She had some advice for all of us. She wants us to stay active and keep our bodies in good shape. Also, to know to remember that God made us, and that we can rely on Him to help us.

She also told us that she's SHOCKED at how weak she is. Because she spent the first week and a half or so just laying in bed under sedation, and she hasn't been able to do much since then, she's lost a lot of muscle mass. She still doesn't remember how long she's been in the hospital (19 days) and so it's even more surprising to her how much muscle she's lost. So, to sit up, get to a standing position and walk a few steps to a chair is tremendously difficult for her now. The P/T folks are working her out a couple of times a day now, and hopefully she'll be strong again soon.

A bit of bad news today; we don't have her glasses! We have her reading glasses! I've noticed that she can't see the items taped on the walls, or the clock, etc, and I wasn't sure why. Today she told us that she's got the wrong glasses. They're better than nothing, but she can't see anything farther away than an arm's length. Since Brian and Alicia have looked in every nook and cranny in her house for her glasses, and we know her coworkers have checked all over the office, we believe her glasses may have been lost in the ER. We need to find her eye doctor and see what it will take to get her a replacement set. Poor thing!

Also, because the incision from her brain surgery is healed up, and the ventriculostomy is out, they said they can wash her hair later today. This will be her first real shampoo since the aneurysm. She looks fine, but she's had blood and betadyne and everything else in her hair, and I bet she doesn't even realize how much better that will make her feel to get clean. Yay for shampoo!

BIG NEWS!!!! Her nurse stopped Davin and started to tell him about the process to move her to a rehab center. It's good to get more information about this, since it could be happening soon, maybe even in the next week! We don't know how long she'll be there, but it's a big step on the way to going home.

1 comment:

  1. I just got off the phone w/Linda and related to her a bit of what she's in for, in terms of 'it all coming back."

    Linda can tell you of my physical journey back from the brink, though a different brink that an aneurysm. It's a looong road and it's hard damn work, but it *will* come back.

    Thanks to you all, she'll have a great support system and I told Linda that anything I could do, she can count on me doing!

    Take care all, for *you* the caretakers, need to take care not only Linda but you.

    I'll be seeing you soon, and Linda? I now have the rights to record a CD of music and hoefully, in March or so, Don and I will finally have our first CD! you're on the list for a *freebie*...;)

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