Today they removed Linda's trach and catheter, and since she passed her swallowing test, we expect to see her nasogastric tube (NG tube) go, too!
This whole time, Linda's been receiving nutrition either through her IV or through her NG tube, but now they're saying she may get ACTUAL FOOD tonight for dinner since she's passed the swallowing test today.
Beforehand, the nurse explained that for the swallow test, they would take her to the x-ray department and feed her radioactively-tagged foods of varying textures. As she swallowed the foods, they watch on the scans to see if they go down properly and not into her lungs, etc. I joked with her, "Wow Linda, there's good news and bad news. The good news is that you get to eat real food! The bad news is that it's all radioactive." She looked at me and shrugged her shoulders and said, "I don't care!" with a big goofy smile. Yay, Linda! It's good to see her sense of humor is back.
Other big news, maybe the biggest, is that Linda seems to be making and retaining new memories quite well now. It's literally like she "woke up" some time over the last few days. She's remembering conversations about her rehab choices, and which tests and medications she's had, and when her kids and grandkids have been in to see her, and everything else that's happened. She has no recollection from before the weekend, and it's unlikely she will remember that, but that's pretty normal. And really, most of that stuff was awfully unpleasant. If she had to "lose" some time from her life, I can't think of three crummier weeks! We'll just chalk that up to taking out the trash, and move on. ;-)
I asked her if she knew that she is doing much better than everyone has expected her to, and she said, "I figured I must be, because anytime someone comes in who doesn't see me every day they say, 'WOW, you look really great!!!!!'" Hee hee! Yep, she really is looking good.
She says she's still pretty overwhelmed by the hospital routine (which is essentially all new to her) but that she may be ready for visitors sometime soon. Keep checking here and we'll keep you posted. I know a lot of folks want to come and see her, so we'll try to get that moving as soon as she's up to it. You guys are really neat people! Linda's blessed to have so many people praying for her, caring about her and checking up on her :-)
We believe that Linda will be moved tomorrow. Of course, nothing's ever sure in a hospital setting until after it's done, but that's what they're saying today. They're not saying where she's going yet, but the smart money at this point is on the LTAC that Davin described yesterday. We'll keep you updated as we find out what's happening.
Showing posts with label memory. Show all posts
Showing posts with label memory. Show all posts
Wednesday, October 7, 2009
Thursday, October 1, 2009
Look Who's Talking!
Linda had a trial run with the Passy-Muir valve today, and she was able to talk for 15 minutes! The speech therapist kept her going, asking her questions about her house, and her dog, and stuff that she likes to do, etc. It was SO NICE to hear her speaking! They said they'll try it for a little longer every day, and soon she'll be talking like a champ and using the valve all the time that she's awake.
Right now her voice is very rusty, and it was a lot of effort to speak. So, she was out for a nap after the 15 minutes. But she was so happy to just be able to talk out loud. I actually got pretty teary, I was so excited for her. And PROUD of her! What a big step this is!
The valve works by allowing air to go in through it, but not go out. So, when she breathes out, the air passes the trach and goes up through her vocal chords and out her mouth, just like normal speech. So, if she wanted to, she could talk on the phone or into a microphone, and it would sound just like anyone else.
While the valve was on her trach, they used a nasal cannula to deliver oxygen to her. So, the oxygen wasn't going into the trach, it was going up her nose. Her saturation was excellent the whole time, which bodes well for her getting off of the trach entirely, hopefully soon. Yay!
AMAZING NEWS!!!! I believe Linda remembered something today from yesterday. I may be reading too much into this, so I'll tell you all what happened and you can decide what you think.
Yesterday, one of the respiratory therapists came in to do the regular trach cares, and she didn't like the placement of Linda's pulse oximeter or "pulse ox." She took the old one off of her Linda's finger, and put a new one on her ear lobe. The therapist and I chatted a bit, because I'd never seen one on an ear lobe before, and she explained all the places you can put them.
Today, the same respiratory therapist came in to check on the supplies in Linda's room. As she walked in front of Linda, Linda looked at her, blinked a couple of times, then slowly moved to point to her earlobe and the pulse ox. I said, "Yes, Linda, she's the person who put your pulse ox on your earlobe, you do remember that?" She smiled and nodded her head.
I really do think she remembered her from yesterday! If so, that's the first time I've seen that happen. Hopefully we'll see more of that. Keep praying, your prayers are working!
Meanwhile, back in lung news... Later today they're planning to do a procedure called a thoracentesis. They'll use ultrasound to find pockets of fluid that are outside of her lungs, but inside her chest cavity. Then, they'll use a local anesthetic, and insert a needle or catheter and draw out that fluid. The doctor said that this will allow her lungs to inflate more fully, so she can breathe better and cough more efficiently. Hopefully, this will help resolve her aspiration pneumonia more quickly, since her lungs are causing her so much trouble right now.
Linda asked me to read out loud to her today from a book called Spontaneous Evolution. We read two chapters, and it's pretty interesting so far. That's the first time she's asked for a read-aloud, and she seemed pretty on track with paying attention. We even "discussed" it a bit, through her notes. I thought that was a tremendous bit of fun, and something she just wouldn't have been up for even a week ago.
The only weird, downer bit of news today is that last night she had a period of abnormal heart rhythm called atrial fibrillation, or "afib." They're saying that it's not really a big deal, and they've added a medication to help keep it under control. I just don't like adding new problems at this stage of the game.
Right now her voice is very rusty, and it was a lot of effort to speak. So, she was out for a nap after the 15 minutes. But she was so happy to just be able to talk out loud. I actually got pretty teary, I was so excited for her. And PROUD of her! What a big step this is!
The valve works by allowing air to go in through it, but not go out. So, when she breathes out, the air passes the trach and goes up through her vocal chords and out her mouth, just like normal speech. So, if she wanted to, she could talk on the phone or into a microphone, and it would sound just like anyone else.
While the valve was on her trach, they used a nasal cannula to deliver oxygen to her. So, the oxygen wasn't going into the trach, it was going up her nose. Her saturation was excellent the whole time, which bodes well for her getting off of the trach entirely, hopefully soon. Yay!
AMAZING NEWS!!!! I believe Linda remembered something today from yesterday. I may be reading too much into this, so I'll tell you all what happened and you can decide what you think.
Yesterday, one of the respiratory therapists came in to do the regular trach cares, and she didn't like the placement of Linda's pulse oximeter or "pulse ox." She took the old one off of her Linda's finger, and put a new one on her ear lobe. The therapist and I chatted a bit, because I'd never seen one on an ear lobe before, and she explained all the places you can put them.
Today, the same respiratory therapist came in to check on the supplies in Linda's room. As she walked in front of Linda, Linda looked at her, blinked a couple of times, then slowly moved to point to her earlobe and the pulse ox. I said, "Yes, Linda, she's the person who put your pulse ox on your earlobe, you do remember that?" She smiled and nodded her head.
I really do think she remembered her from yesterday! If so, that's the first time I've seen that happen. Hopefully we'll see more of that. Keep praying, your prayers are working!
Meanwhile, back in lung news... Later today they're planning to do a procedure called a thoracentesis. They'll use ultrasound to find pockets of fluid that are outside of her lungs, but inside her chest cavity. Then, they'll use a local anesthetic, and insert a needle or catheter and draw out that fluid. The doctor said that this will allow her lungs to inflate more fully, so she can breathe better and cough more efficiently. Hopefully, this will help resolve her aspiration pneumonia more quickly, since her lungs are causing her so much trouble right now.
Linda asked me to read out loud to her today from a book called Spontaneous Evolution. We read two chapters, and it's pretty interesting so far. That's the first time she's asked for a read-aloud, and she seemed pretty on track with paying attention. We even "discussed" it a bit, through her notes. I thought that was a tremendous bit of fun, and something she just wouldn't have been up for even a week ago.
The only weird, downer bit of news today is that last night she had a period of abnormal heart rhythm called atrial fibrillation, or "afib." They're saying that it's not really a big deal, and they've added a medication to help keep it under control. I just don't like adding new problems at this stage of the game.
Wednesday, September 30, 2009
Day 15 Post-Aneurysm
Today we had some pretty great news! The ventriculostomy was removed this morning, because they aren't worried about her intracranial pressure any more. That's HUGE!
Also, they took the staples out of the incision on the side of her head. She looks much more Grandmotherish now, and decidedly less Frankensteinish without them. I'm not sure she ever got a chance to see them, but knowing Linda she wouldn't have liked them and would be glad to have them gone gone gone.
And, one of the neurosurgeons stopped by to talk to her for a bit this afternoon and said that she's doing great. He said that, since she's made it 2/3s of the way through the 21 days with no vasospasms, that her odds of having any now are much lower. Not that she's over the risk, by any means, but that's the best news we've had in that area, so I'm just going to take a minute to do a little happy dance over here...
Funky, funky, cha cha cha! Wheeeeeeee!!!!!!
OK, I'm back, and we're into the less exciting stuff now.
She still doesn't seem to be making any new memories, but her old memories are pretty rock solid! She wrote down the names of some of my family members from out of state, and some other folks, and asked all about them. That was good to see. She had no idea where Scruffles was, though, and needed to be reminded that he's safe at home with us, getting his food and medicine. The nurses assure us that this is normal, and will slowly get better.
Right now, the big worry is that she's not breathing very well. When she had the aneurysm, she vomited and and inhaled some of the contents of her stomach. This is very common, and it's called aspiration pneumonia. They've treated her from the beginning with antibiotics, but it can take a while for the lungs to clear all that stuff out, and in the meantime it just gets more and more irritated in there, so it can make itself worse.
Until they can get her lungs a little more cleared out, and get her breathing a little better (on less oxygen), they can't put the Passy-Muir Valve in her trach that would allow her to speak as well as use it to breathe. They're hoping that as soon as tomorrow, they can start transitioning her, but it will depend on how well she's doing.
If you're the praying type, this would be a good thing to pray for. She is incredibly frustrated with the communications options available to her, and being able to speak would alleviate so much stress!
There's not a lot of space in her room for flowers, and the ICU is very touchy about them, so we're asking people to wait until she's either in a different part of the hospital or back home to send any. She's loving the cards that are coming in, though, and she likes to look through them and see who's written to her. Since she can't really remember who all has made contact with her since she's been in the joint, cards are a good way for her to be reminded as many times as it takes that you've thought of her :-)
If you'd like to send a card and you have her home address, that's perfect! Brian and Alicia are staying at her house and are checking her mail and will get it to her as soon as they are in to see her. If you don't have her address, you can email me at hipmama1970@gmail.com and I'll send you an address to use.
Thanks for keeping Linda in your thoughts and prayers!
Also, they took the staples out of the incision on the side of her head. She looks much more Grandmotherish now, and decidedly less Frankensteinish without them. I'm not sure she ever got a chance to see them, but knowing Linda she wouldn't have liked them and would be glad to have them gone gone gone.
And, one of the neurosurgeons stopped by to talk to her for a bit this afternoon and said that she's doing great. He said that, since she's made it 2/3s of the way through the 21 days with no vasospasms, that her odds of having any now are much lower. Not that she's over the risk, by any means, but that's the best news we've had in that area, so I'm just going to take a minute to do a little happy dance over here...
Funky, funky, cha cha cha! Wheeeeeeee!!!!!!
OK, I'm back, and we're into the less exciting stuff now.
She still doesn't seem to be making any new memories, but her old memories are pretty rock solid! She wrote down the names of some of my family members from out of state, and some other folks, and asked all about them. That was good to see. She had no idea where Scruffles was, though, and needed to be reminded that he's safe at home with us, getting his food and medicine. The nurses assure us that this is normal, and will slowly get better.
Right now, the big worry is that she's not breathing very well. When she had the aneurysm, she vomited and and inhaled some of the contents of her stomach. This is very common, and it's called aspiration pneumonia. They've treated her from the beginning with antibiotics, but it can take a while for the lungs to clear all that stuff out, and in the meantime it just gets more and more irritated in there, so it can make itself worse.
Until they can get her lungs a little more cleared out, and get her breathing a little better (on less oxygen), they can't put the Passy-Muir Valve in her trach that would allow her to speak as well as use it to breathe. They're hoping that as soon as tomorrow, they can start transitioning her, but it will depend on how well she's doing.
If you're the praying type, this would be a good thing to pray for. She is incredibly frustrated with the communications options available to her, and being able to speak would alleviate so much stress!
There's not a lot of space in her room for flowers, and the ICU is very touchy about them, so we're asking people to wait until she's either in a different part of the hospital or back home to send any. She's loving the cards that are coming in, though, and she likes to look through them and see who's written to her. Since she can't really remember who all has made contact with her since she's been in the joint, cards are a good way for her to be reminded as many times as it takes that you've thought of her :-)
If you'd like to send a card and you have her home address, that's perfect! Brian and Alicia are staying at her house and are checking her mail and will get it to her as soon as they are in to see her. If you don't have her address, you can email me at hipmama1970@gmail.com and I'll send you an address to use.
Thanks for keeping Linda in your thoughts and prayers!
Thursday, September 24, 2009
9/24 Getting Better All the Time
Linda is still off the ventilator, and they will move her into a smaller trach today or tomorrow. This is good news because this means that soon she will be able to eat and (trumpet fanfare) TALK!!!!
The hospital has a couple of boards she can use, one has a series of useful phrases she can point to, and the other has the alphabet, kind of like a ouija board only it's for brain injured people instead of dead people :-/ She doesn't like them, though, and waves them away preferring to write us notes, and mouth words and do some pretty talented pantomime. If there is a World Series of Charades, I'm putting my money on Linda, because she can get just about any idea across just by acting it out, it's pretty fascinating to watch!
Even so, I'm sure she'll be glad to put her inner mime back in the invisible box and resume regular speech with people. Hopefully that will be really soon, because she gets frustrated when we don't understand what she's trying to say, in spite of her talent. :-( It would bug me too, so I really try, but some concepts are just too complicated.
Today she is also off of the painkiller they've had her on, and her memory does seem to be improving. Also, she seems less agitated, which I was noticing really seemed to go hand in hand with the painkiller.
As she asked the nurses questions, the information seemed to "stick" better today. One of the nurses told her that she'd be in the hospital for 21 days at least, because that's the risk period for the vasospasms. That really stuck in her head, and later when her minister came by for a visit, she indicated it to him. That was AWESOME to see, because I feel like we're starting get a handle on where Linda is actually at in her head, without all the medications messing her up. I imagine we'll get an even better picture when she starts talking.
She's having a few issues with her day/night cycle. The nurse says that's really common, and they'll probably start giving her medication to help her keep them straight. Hopefully it will not affect her like the other meds did. They say that at night she agitated and wound up and doing odd things that aren't like her during the day, and that this is pretty normal for neurosurgery patients in the ICU for as long as she has been and will be. That can't be easy to deal with for her, and I hope that as she can do more things for herself this will alleviate some of the stress she's experiencing, right now she's pretty powerless.
The hospital has a couple of boards she can use, one has a series of useful phrases she can point to, and the other has the alphabet, kind of like a ouija board only it's for brain injured people instead of dead people :-/ She doesn't like them, though, and waves them away preferring to write us notes, and mouth words and do some pretty talented pantomime. If there is a World Series of Charades, I'm putting my money on Linda, because she can get just about any idea across just by acting it out, it's pretty fascinating to watch!
Even so, I'm sure she'll be glad to put her inner mime back in the invisible box and resume regular speech with people. Hopefully that will be really soon, because she gets frustrated when we don't understand what she's trying to say, in spite of her talent. :-( It would bug me too, so I really try, but some concepts are just too complicated.
Today she is also off of the painkiller they've had her on, and her memory does seem to be improving. Also, she seems less agitated, which I was noticing really seemed to go hand in hand with the painkiller.
As she asked the nurses questions, the information seemed to "stick" better today. One of the nurses told her that she'd be in the hospital for 21 days at least, because that's the risk period for the vasospasms. That really stuck in her head, and later when her minister came by for a visit, she indicated it to him. That was AWESOME to see, because I feel like we're starting get a handle on where Linda is actually at in her head, without all the medications messing her up. I imagine we'll get an even better picture when she starts talking.
She's having a few issues with her day/night cycle. The nurse says that's really common, and they'll probably start giving her medication to help her keep them straight. Hopefully it will not affect her like the other meds did. They say that at night she agitated and wound up and doing odd things that aren't like her during the day, and that this is pretty normal for neurosurgery patients in the ICU for as long as she has been and will be. That can't be easy to deal with for her, and I hope that as she can do more things for herself this will alleviate some of the stress she's experiencing, right now she's pretty powerless.
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